Tuesdays are longer radiation appointments.
Because of this, I have reinstated bringing cookies to appointments on Tuesdays!
Every other day of the week, this is radiation:
- Check in with Kimberly at the front desk
- Walk back to the changing area, trade out my top clothing for a half gown
- Wait to be called back by Ingrid or Becky
- Hop in my mold on the table
- Pull an arm out of the sleeve
- Lay back and get into position
- Have radiation
- Put my arm down
- Sit up and head back to change
On Tuesdays, I do the same thing but there is some filming that goes on during the session. Radiation Oncologist Dr. Lingareddy will watch the films as part of my monitoring.
After the session, I meet with Cecilia, Radiation Oncologist’s nurse. We go over how things are going. We check vitals and then Radiation Oncologist Dr. Lingareddy will come in.
Today she had Occupational Therapist Rita with her. (This was a good thing).
Progress is going well. Radiation Oncologist Dr. Lingareddy complimented me on my ability to stay so still during treatments. Let’s just say I’m an awesome patient! Many people have a hard time lying still I guess. She joked that it didn’t even seem like I was breathing – which I explained that most of the time I forget to breathe and end up taking a deep breath between scans!
Overall – six treatments in and all is well.
I did bring up something that has been bugging me and I wasn’t sure who to go to. I have these odd pains in my left arm. They are really hard to explain.
- The pain isn’t all the time
- The pain is in different places of my arm: along my tricep, at the joint of my elbow, at my wrist, on my palm
- It isn’t muscular or skin
- It’s like having a bruise – only hurts when you touch it
It turns out that this kind of pain happens post surgery. Radiation Oncologist Dr. Lingareddy and Occupational Therapist Rita asked me to raise my arm and immediate looked at each other and said “cording.”
Of course I have looked this up for you!
It’s actually called Axillary Web Syndrome
If you have axillary web syndrome, you’ll often be able to see and/or feel a web of thick, ropelike structures under the skin of your inner arm. Lymphedema therapists often call these “cords.” (In some cases, you may not see or feel the cords, but sensations of pain and tightness will tell you they are there.)
Some experts believe that the surgery to the underarm and chest area traumatizes the connective tissue that encases nearby bundles of blood vessels, lymph vessels, and nerves. This trauma leads to inflammation, scarring, and eventually hardening of the tissue. This hardening can spread down the fibers of the connective tissue, which causes the cords to form
What do we do about this? Occupational therapy with someone who understands axillary web syndrome. I should have some more information in the next couple of days about setting up some sessions. I’m happy about that because this pain is limiting during my daily activities.
With Tuesdays being meeting days, I decided to contact my friends at Cupcake Moms to create some delicious treats to hand out. It must not happen very often because everyone was so greatful!! HOORAY!!!
https://www.facebook.com/home.php#!/cupcakemoms?fref=ts – Candy is AWESOME!! She does cupcakes too…exceptional quality, super fresh and always creative!
See you tomorrow!!